11/24/2020
It's a fairly long post but I hope that you will read it and possibly understand me and my knotting ability a bit better. β€οΈ
I haven't posted anything here in a VERY long time but I feel like it's time for me to get back to knotting again no matter how difficult and frustrating it can be for me now. (My body just doesn't work the way it's supposed to anymore so everything takes SO much longer to do now.)
I have progressive multiple sclerosis (MS) which is a neurological disease in which the immune system eats away at the protective covering of the nerves in the brain and spinal cord. In MS, resulting nerve damage disrupts communication between the brain and the body. (I once heard it compared to a frayed phone charger. Sometimes it will charge the phone, sometimes it won't, sometimes it will just set the whole phone on fire. π )
The nerve damage I've suffered up to this point has caused several issues which affect my ability to knot. Sometimes I have diminished or no feeling at all in my fingers which makes it difficult to feel and hold on to the strings. Sometimes I just can't get my hands to do what I want them to do which is really frustrating. I also live with constant (often excruciating) pain, near-constant tremors, frequent painful muscle spasms, and severe fatigue which can all obviously make knotting difficult in one way or another. But my vision issues are probably the main reason knotting has become so much more difficult for me. I was born with nystagmus (uncontrollable movement of the eyes) and have always had fairly poor vision but after a really bad MS flare, I became legally blind (my vision is now 20/200 with glasses, 20/400 without) and the nystagmus that I've been able to *semi* control my entire life is now completely out of my control. Maintaining focus on anything is extremely difficult when everything looks like it's moving. I get a lot of headaches and vertigo from it so I have to take LOTS of breaks. Some days are so bad that I can't see well enough to make anything that would require me to look at a pattern (like alpha patterns or other detailed patterns) and unfortunately, those days seem to be more often than not now. So on days like that I like to make things that don't require as much of my vision like the pride bracelets in this pic. β€οΈπ§‘πππππ€π€π€
Hopefully I'll be able to get back to posting things more often as I find ways to adapt to my new "normal". I'm probably mostly going to be posting some of my older stuff that I still have available for a bit while I work on special orders and finish some other stuff but if you're looking for something specific, just let me know and I'd be more than happy to make it for you! (I will still continue to do special orders, but you may have to be patient since I have no idea how my body is going to cooperate from minute to minute.) Thank you so much for reading! β€οΈ